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PHO3NIXONFIRE
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PHO3NIXONFIRE's Blogs

Where I've been, where I'm at, and where I'm going:
Thursday, January 21, 2021      3 comments

Yeah..... so November was my last blog entry. It honestly feels a lot longer than that. So what happened? Where did I go? Well..... it's been an adventure, that's for sure.... In November I posted about my Neurosurgery appointment and the ... Read more
The results of my visit:
Saturday, November 14, 2020      4 comments

Well... that didn't go as planned...... I met with my new NS yesterday, and I started with the PA. After a review of my history she went over her impressions. She obviously confirmed the Chiari Malformation 1.5, but when we started talk... Read more
Big Appointment Day
Wednesday, November 11, 2020      3 comments

Today is a huge day for me.... Today I am meeting with Dr. Robert Friedlander, Chair of the department of Neurosurgery for UPMC Pittsburgh. This guy is the top of the top for my condition (Chiari Malformation) in the state. I'm both ... Read more
Inner Monolouge
Tuesday, November 10, 2020      3 comments

Did you know that some people don't have an inner monologue? I learned this the other day and it fascinated me. I've always had one, and while I may not like that voice in my head from time to time, I'm glad she's there. So, I learned that... Read more
Small Changes.
Saturday, October 31, 2020      5 comments

I don't have much to say today... it's been a long week a... Read more
Observe, Breathe, Reset.
Wednesday, October 28, 2020      7 comments

When I have a hard time coming up with something to write, I know I'm in a funk. . . I've been funky for a few days now, if I'm being honest. I'm overwhelmed. I'm exhausted. I'm trying as hard as I can to be mom, wife, employee, friend, an... Read more
Appointment results and next steps:
Wednesday, October 21, 2020      6 comments

I've had a few days to muse over the information that I received from my Neurosurgeon. Essentially what he told me is that between the cranial settling and Chiari my Medulla Oblongata is being smooshed. He said I don't have CCI/AAI, TCS, or EDS ... Read more
Monday morning musings:
Monday, October 19, 2020      7 comments

It's 5:50 am and I'm up for my day. Starting mindset: Get through today. I overdid it yesterday. Oy. We are in the process of cleaning, rearranging and de-cluttering our bedroom. We have 7 years of stuff we didn't want in the main areas of... Read more
Scale scares and a mindset reset.
Saturday, October 17, 2020      4 comments

So. Today marks my first "weekend" since I started working. . . what a week it was. My new job is crazy. Chaotic. Non Stop. I'm averaging about 5500 steps a day (which I need to kick up a bit) BUT I am hitting between 20 and 30 fligh... Read more
Back to work check in:
Wednesday, October 14, 2020      2 comments

Let me start by saying, It's 4 am..... I've been back to work full time for 2 days and honestly, last night I was ready to message my manager and say "I can't do this." Not because of the job but because I got home and my husband was so fr... Read more
Change, she is a comin'...
Sunday, October 11, 2020      6 comments

So this time tomorrow, I will be getting into my car and headed to work. . . That seems a strange distant concept now, work. I've been out of a job since March 20,2020. This has been the longest period of unemployment I have EVER had... it... Read more
More scans! (and how I got my steps last night.)
Thursday, October 08, 2020      7 comments

Today is a LONG day. I've been up since 3 am. I had to be at the hospital at 5:15..... I was there for four and a half hours for my MRI's. I'm pretty sure if you turn the lights out... I'd glow. Joking aside, today we were looking at... Read more
The importance of taking notes:
Wednesday, October 07, 2020      9 comments

Yesterday was a particularly rough day. I had a lot of issues with nerve pain, bad balance, and just overall lethargy. I hate days like that. They really have a bad impact on my mood and mental health. I feel worthless and lazy on days like that... Read more
So what's a flair up feel like? Day three musings.
Tuesday, October 06, 2020      5 comments

It happened.... I knew it would, but I have to admit that it caught me off guard. I was stretching yesterday after my walk and I got a sudden buzzing in my legs.... nerve pain, loss of sensation, and I went down. Not hard, I was able to coordina... Read more
Day two: Yoga helped!
Monday, October 05, 2020      3 comments

So, I posted yesterday about my walk and how I felt yesterday morning when I woke up. I did my mile yesterday evening after dinner. Then I did 20 minutes of deep stretching yoga. This morning I woke up and I'm sore, but not like I wa... Read more

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