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Dealing with Death, Sickness and Flares

Thursday, December 20, 2012

Ok, well some of y'all may realize I haven't been on here in a while. There has been so much going on that sparking has not been possible. It has been a sad and trying time.

First of all, I had a cousin who was very sick. She was the same age as me, 54. I consider this a relatively young age. She needed a liver transplant but they finally decided her heart wasn't strong enough to make it thru the procedure. While her Mom and the rest of the family was trying to come to terms with this news and preparing for the inevitable, her brother, my other cousin, passed away in the middle of the night by a heart attack. no one was prepared for this and my aunt, God Bless Her, was totally devastated. She was dealing with much guilt, thinking she had neglected him. I feel, he wouldn't have added extra worry to her, even if he knew something was wrong. So, she had to make his funeral arrangements and had to wait on her daughter to pass as well so she could bury them together. This took a period of 9 more days. This was very heartbreaking to us all. On my birthday, I buried both of my cousins who I was very close with growing up. My Aunt had to bury her oldest son and her baby girl (and the only girl). So sad and It was a devastating time for the whole family.

Afterwords, I got sick with a virus and had to quit my embrel injections for 2 weeks. I had been starting to feel much better before that. Let me tell you what... I realized how much those injections were actually helping when I had to stop them. It was a real trial, dealing with a virus, then my body flaring back up so quickly and in such pain. The injections didn't kick in and start working as quickly this time around as the time before. but they are starting to work again now. For a while, I've been in a major flare, unable to do alot. I'm very happy they are working again. I didn't want to take these injections when the Dr. first prescribed them but I must admit, they've really made a difference. I also had to go around and around with the insurance but I think I've finally gotten that straightened out and so far I haven't had to pay for it. I hope this continues or I shall be in bad shape because we sure can't afford this medication.


Life has stepped in and deterred me from my journey and my friends. I'm back now and look forward to continuing in a positive and forward direction. I've missed All my Sparklers and I hope y'all are pushing thru and staying positive. Sending Hugs to You ALL!
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Member Comments About This Blog Post
  • ICECUB
    LISA I AM SO SORRY FOR ALL YOUR LOSSES.YOU ARE IN MY THOUGHTS AND PRAYERS. YOU CAN DO THIS.
    2556 days ago
  • CVRONEK
    Oh, I am so very sorry, Lisa. I just now read what you and your family have been going through. My heart goes out to you all.

    You do have such a positive attitude though and that says so much about your strength and character.

    Welcome, back, my friend.

    Let's get on this healthy roll, together.
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    Chris
    2560 days ago
  • DYNAMICDEB53
    Lots of big old Bear Hugs, Lisa. I am very sorry for your families loss, so hard on a Mom to lose a child but 2, I just dont know.
    I am glad you are feeling better and the meds you are taking are really helping and that you feel good about that too.
    I have missed you, butr life here has kept me from spending much time on SP. I am glad you are back and hope to see more of you. Take care of yourself.

    More hugs and smiles
    Deb
    3061 days ago
  • DOODIE59
    Lisa, I'm so sorry to hear about your family's misfortunes. That is awfully sad, and very hard to get past.

    I can see why you fell ill, though. Stress really lowers one's immune system. Sending big hugs your way. Treat yourself kindly and well.
    Deirdre
    3063 days ago
  • GINIEMIE
    I'm sorry about your losses Lisa. My prayers for you and your family especially your aunt. I lost my sister to her brain tumor November 7th, so I have a slight understanding of your pain. Sorry about the virus that waylaid your pain control. Glad you are getting back on track physically.
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    3063 days ago
  • no profile photo CD10895053
    Oh my dear Lisa, I'm so sorry for all you've had to go through. That would just tear you up inside! And no wonder you got so sick with a virus, you were in such a vulnerable state. And oh ouch, for the pain wthout being able to have your beloved Enbrel. Hopefully now, you'll be feeling better and better with it working over-time to help you. I have had my 2nd injection now of Enbrel and it hasn't kicked in yet, but I'm hoping that it will soon. I'm on my 2nd week. How long did it take you before you first felt relief from it? I know that they say anywhere from 2 weeks to 2 months before it kicks in. I guess I just need more patience, but it's hard to have when we hurt. We're not going to have to pay a whole lot either with Phizer helping to pay alot of it and then my $10,000 deduct. takes over! I can feel your pain of losing your two cousins. What a shock to the system that would be. And you were so close to them. I have cousins like that too and to lose them would be so devastating! I'm 54 too you know, and that is so young! That's the age my sister died at! You and I have to show all of our family that we can be healthy. Not that your cousins weren't but I know that my sister wasn't. Let's just make sure that you and me will be more healthy than we ever would be without SP and all our Sparkable friends!

    Love and

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    Karen emoticon emoticon
    3063 days ago
  • SKEETOR
    I'm so sorry to hear about your losses. I will keep you and your family in my prayers.
    3063 days ago
  • no profile photo CD12146214
    You are in my prayers! Hope that next Year is a better one for you!
    3063 days ago
  • no profile photo CD9922996
    Lisa,

    So tragic what is happening all around and inside you and yet here you are reaching out to others and continuing forward with your bodily intentions. What a testimony to the faith and love that shines through you and how much you must rely on that to help you through these kinds of trials. I pray that your cousins and your family feel the love that you have in such abundance, and that you feel its return to you.

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    3063 days ago
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