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PICKIE98's Photo PICKIE98 Posts: 79,442
3/12/18 1:30 P

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I will have to ask my doctor about that when I return to him in May.

Edited by: PICKIE98 at: 3/13/2018 (13:34)
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CD22890428 Posts: 1,314
3/10/18 10:34 P

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I take an OTC for my neuropathy...Alpha Lipoic Acid 300mg twice a day. It has really helped my hands. I can actually type and craft again.
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3/8/18 9:09 A

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I have two suggestions that may help, or that you can at least talk with your doctor about. I suffer from migraines, and have read a lot about neurologic pain. Perhaps magnesium would help. I take magnesium citrate 200 mg a day. Lots of people with nerve pain are low in magnesium. Also, after a blood test I found out last year that I'm very low in vitamin D, and I've been taking weekly prescription vitamin D pills for that, and people low in vitamin D can also have more nerve pain. You can google nerve pain and vitamin D and magnesium, and find some info on them. So, just some ideas to pursue.

Also, I was a bit confused by one post. I take metformin (for diabetes), and I also take gabapentin for migraines. I looked it up to see if there were any drug interactions, and didn't find any, and my doctor hasn't told me of any. The only warning I've been given about gabapentin is to not take a magnesium or aluminum containing pill or antacid within two hours of the gabapentin, because it will block the gabapentin. The gabapentin has helped a lot with my migraines. I also take topamax for them.

I wish you all the best, and hope you find some relief!

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That word is love. - Sophocles


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PICKIE98's Photo PICKIE98 Posts: 79,442
3/7/18 10:59 A

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Healthnow:
I take glipazide for my diabetes, diclofenec, gabapentin, OTC pain meds for the fibromyalgia, arthritis and diabetic neuropathy. My Rx insurance will not pay for the diclofenec AND nabumatome, so they d/c's the latter.

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PATRICIAAK's Photo PATRICIAAK Posts: 153,262
3/5/18 8:43 P

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I'm sensitive to many 'man-made' items (meds, sutures, etc.). Therefore, I chose 'God-made' (plants, sea salt, etc.) whenever possible.

Become Your Best! Be kind
Have a TERRIFIC day!
Patricia Kaine MD, OFS
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-SPIRITSEEKER2-'s Photo -SPIRITSEEKER2- Posts: 32,103
3/5/18 8:07 A

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can not take gabapentin.......or Metformin......body is really sensitive to pharmaceuticals

Fluffy in SC

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3/4/18 8:02 P

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@pjckie98 what diabetic medication do use with it? I understand it can't be taken with Metformin.

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PICKIE98's Photo PICKIE98 Posts: 79,442
3/4/18 6:08 P

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I have had neuropathy for over twenty years, but only got diagnosed with diabetes in 2007. I use gabapentin for the pain and needles. NO side effects. It is a generic drug.

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-SPIRITSEEKER2-'s Photo -SPIRITSEEKER2- Posts: 32,103
3/4/18 9:17 A

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I have to use various places all over legs & feet .. because I also have eczema & psoriasis.. the patches cause a flare in the place ...
so sorry for your situation - I just fire dr's down here if they do not act appropriately.
any way can your ins company refer you to a good one ?

Edited by: -SPIRITSEEKER2- at: 3/4/2018 (09:18)
Fluffy in SC

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3/4/18 3:50 A

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@Spiritseeker2 I'm sorry. Insurance companies should not be allowed to deny treatment especially when it was covered in the past & worked for you.
Do/ did you use the patches on your feet?
Yes they checked my thyroid blood levels. I have Hashimotos Thyroiditis, but I'm not low in thyroid hormone yet.
Finding specialists who are accepting insurance & available without 3-4 month wait is shockingly difficult & I'm in NYC.
Frankly I'm stunned by the situation & by how incomplete the exams are....they are so rushed. Glad you have a doctor who can listen & help.

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3/4/18 3:42 A

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Yes, they checked for G-B & said it's not that. From what I've read I'm lucky not to have been paralyzed by the TM & if I have any luck it won't recur, but have no clue why it happened. The neurologist & neuromuscular specialist are new to me & they don't seem to believe that the extensive neuropathy is new despite my providing copies of previous nerve testing being normal.

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PATRICIAAK's Photo PATRICIAAK Posts: 153,262
3/3/18 11:42 P

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Have you been checked for Guillain-Barré syndrome?

Become Your Best! Be kind
Have a TERRIFIC day!
Patricia Kaine MD, OFS
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-SPIRITSEEKER2-'s Photo -SPIRITSEEKER2- Posts: 32,103
3/3/18 8:18 P

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so sorry you are having this mess... I also have painful neuropathy and see a neurologist .. I can not take the drugs they say are for it - I use lidocaine 5% patches .. and just does get me by .. the same ins company I had last year now says they will not cover it - my dr has fought for me 2Xs- I just sent a nasty letter to them , I am not taking narcotics either - how can they judge what my pain is and what is helping me........... my # is 5.7 - 6 .. and this has been going on for years ..I also heard thyroid issues can cause it - in which I have atrophic thyroid - just was ultra sounded........in which should have been done years ago....... I am 62.
I hope you find a GOOD DOCTOR soon. one that will actually listen - I have fired a lot - being treated by my gyn - he is the only one that listens and helps .. good luck


Fluffy in SC

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3/3/18 5:34 P

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I've been dealing with chronic pain that keeps me from walking for over a year now. Last month I had sudden onset leg weakness followed 10 days later by numbness, pins & needles & my balance is off. A neurologist said I have diabetic neuropathy & probably transverse myelitis. My A1C was just rechecked & it's stable at 5.7. How can I develop extensive neuropathy, toes, feet & legs virtually overnight? Now 3 weeks after this started I'm having neuropathic pain. I thought if you kept b.s. & A1C levels down you could avoid these diabetic complications, but apparently that is not true. I'm lost in a medical maze of specialist's & sub-specialist's who are too busy to talk or see you....booked up weeks in advance. I'm now on 60 mgs of prednisone for TM & don't know what that is going to do to diabetes or neuropathy.
My 60th birthday is in 3 weeks & I feel 80. emoticon emoticon emoticon
All advice is welcome.

Edited by: HEALTH_NOW at: 3/3/2018 (17:36)
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